Privacy Statement

Our commitment to your privacy

This privacy statement applies to the website

The website is managed by the International Alliance for Pediatric Stroke (IAPS).  IAPS respects and upholds your rights to privacy protection and will explain below how we collect, use, disclose and hold your personal information.

This website

The website provides resources and information. Your contact details, name, personal stories, and images are collected if you elect to provide them.


This web site contains links to other sites. Please be aware that we are not responsible for the content or privacy practices of such other sites. We encourage our users to be aware when they leave our site and to read the privacy statements of any other site that collects personally identifiable information.

What data is collected?

This website collects data that you provide via Add Your Story to the Map, Sign Up for News and Info, and Contact Us forms. Content provided by you on the Pediatric Stroke Stories page may be used to promote Pediatric Stroke Awareness through other channels, such as digital and social media.

Uses of personal information may include sending you email newsletters and following up on inquiries that you have made through the website. You have the right to unsubscribe from email newsletters at any time by clicking the link at the base of the emails. We will not sell or rent this information to anyone.

No information that personally identifies you is collected when you simply browse the site.

Changing your personal information

IAPS will provide access to, and make corrections to, your personal information at your request. Personal information will not be disclosed or used for purposes other than the stated uses, functions and activities of Pediatric Stroke Awareness, unless the disclosure is required or authorized by law.

Your Access to and Control over Information

You may opt out of any future contacts from us at any time. You can do the following at any time by contacting us via the emails listed below:

  • See what data we have about you, if any.
  • Change/correct any data we have about you.
  • Have us delete any data we have about you.
  • Express any concern you have about our use of your data.

If you have any questions about your privacy, please contact us or contact IAPS at