Up Again After Stroke: Finding Your New Normal

While the impact of pediatric stroke is different for each child, the one similarity a stroke brings is lifelong changes for the child and the child’s family. For World Stroke Day 2018, we join the World Stroke Organization’s theme of “Up Again After Stroke” to draw attention to how these children, their parents/caregivers, siblings and family members find their new normal after pediatric stroke.

So, for World Stroke Day 2018, we want to hear from our pediatric stroke families! We are asking parents, caregivers, older children, young adults who had a stroke as a child and anyone who has been affected by pediatric stroke to share your personal experience of how life carried on after a stroke.

We would also like to reach out to those parents who tragically lost their child after a stroke. Although understandably painful, what you experienced could help other families through a very difficult time.

Read what others are saying about their new normal after pediatric stroke.

We would like to hear what helped you get up again and create a new normal for you and your family? What were some of the obstacles? What were some of the lessons you learned?

  1.  We are asking for your top three experiences.  Some examples could be: What worked for going back to school? What worked for scheduling the numerous therapy sessions? As a parent, what did you do for yourself to help with your well-being? As a child who had a stroke, what worked for fitting in socially after a stroke?
  2. Please include the age of your child at the time of stroke, and the age now, if applicable.
  3. We would like to include a picture of your child, so please send that as well.
  4. We will only publish first names, but if you wish to have us post it anonymously, we will respect that. Just let us know.
  5. These will be shared as blog posts on the World Stroke Day 2018 website. In addition, some may be shared on our Facebook and Twitter social media.
  6. Please send everything to info@iapediatricstroke.org. We will let you know once we receive it and then when it will be published on the website.

We look forward to having you join the World Stroke Day campaign and hearing what your triumphs and trials have been for getting up again after stroke and adjusting to your new normal! Thank you!!!